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6 Weeks to Silver Ribbon Awareness Month 2025
October is Niemann-Pick Disease Awareness Month and we will be shining a silver light in 2025!

ANPDF
7 days ago3 min read


Reflections from the 2025 Australian Niemann-Pick Conference
The 2025 Australian Niemann-Pick Conference brought together families, clinicians, and researchers for two days of powerful connection, cutting-edge science, and shared lived experience. Highlights included the launch of Australia’s first NPC care standard, moving keynote talks, and vital updates on global clinical trials.

ANPDF
Jun 263 min read


Honouring Mala Singh’s Wish: A Legacy of Hope
Mala Singh’s $5,000 donation honours her wish for a cure for Niemann-Pick Disease.

ANPDF
Dec 14, 20242 min read


2024 NPC Conference: Advancing Research and Care for Niemann-Pick Disease
The 2024 NPC Conference, hosted by the Australian NPC Disease Foundation (ANPDF), took place at the Florey Institute of Neuroscience and...

ANPDF
Jul 1, 20242 min read


A Night of Hope: Minds in Motion Charity Cocktail
On June 22, 2024, the Australian NPC Disease Foundation (ANPDF) hosted the Minds in Motion Charity Cocktail in Port Melbourne at The...

ANPDF
Jul 1, 20242 min read


Ultimate Legends Boxing Night with Nik from Derrimut 24:7 Gyms
ANPDF Stall at Legend Promotion's Ultimate Legends Boxing event.

ANPDF
Oct 23, 20221 min read


October is Niemann-Pick Disease Awareness Month
October is Niemann-Pick Disease Awareness Month. We are prepared to take our fight all the way! Will you join us?

ANPDF
Sep 28, 20222 min read


It's a wrap! 2022 NPC Conference
The annual NPC Conference, both live and online, attended by patients, families, clinicians and researchers of Niemann-Pick disease.

ANPDF
Jun 30, 20222 min read


2022 NPC Charity Gala Raised $275,000
The second NPC Charity Gala was held February 26, 2022 - close to 2 years after the original date in Oct 2020. It was a great success,...

ANPDF
Mar 7, 20222 min read


NPC Gala Charity Dinner set for a great night, but with a few changes
37 days to go and we are more determined than ever to deliver a fantastic and uplifting event. As with the Australian Open, we have...

ANPDF
Jan 20, 20222 min read


Gala Tickets back on sale!
With only 7 weeks to go, we are in the final countdown to our long-awaited Charity Gala Dinner. Join us for a fantastic night of fine...

ANPDF
Jan 10, 20221 min read


Niemann-Pick Disease Type C: Working together to make a difference
This lecture will present the Australian collaboration and latest research on NP-C, a rare genetic disorder that leads to childhood...

ANPDF
Oct 10, 20211 min read