October is Niemann-Pick Disease Awareness Month
October is Niemann-Pick Disease Awareness Month. We are prepared to take our fight all the way! Will you join us?
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Niemann-PicksOZ
- Sep 18
- 1 min
In honour of Noah Fox, 8yo, NP-C
Today, our hearts go out to the Melbourne-based family of eight-year-old Noah. This NPC angel passed away Saturday morning due to complicati
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Niemann-PicksOZ
- Sep 18
- 1 min
In the news: Brave Mum of 3 children with Niemann-Pick disease type C
Brave mum of 3 children with NP-C shares her story with ABC News.
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Niemann-PicksOZ
- Jun 30
- 2 min
It's a wrap! 2022 NPC Conference
The annual NPC Conference, both live and online, attended by patients, families, clinicians and researchers of Niemann-Pick disease.
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Niemann-PicksOZ
- Mar 7
- 2 min
2022 NPC Charity Gala Raised $275,000
The second NPC Charity Gala was held February 26, 2022 - close to 2 years after the original date in Oct 2020. It was a great success,...
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Niemann-PicksOZ
- Jan 20
- 2 min
NPC Gala Charity Dinner set for a great night, but with a few changes
37 days to go and we are more determined than ever to deliver a fantastic and uplifting event. As with the Australian Open, we have...
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Niemann-PicksOZ
- Jan 10
- 1 min
Gala Tickets back on sale!
With only 7 weeks to go, we are in the final countdown to our long-awaited Charity Gala Dinner. Join us for a fantastic night of fine...
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Niemann-PicksOZ
- Oct 11, 2021
- 1 min
Niemann-Pick Disease Type C: Working together to make a difference
This lecture will present the Australian collaboration and latest research on NP-C, a rare genetic disorder that leads to childhood...
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