Ellie Van VelsenFeb 82 minCommunityNP-C Corner: Everyone deserves to be seenDo you use person-first or identity-first language? Ellie shares how she learned to be more inclusive of people with disabilities.
ANPDFSep 15, 20232 minCommunityHappy NP-C Month! Niemann-Pick Awareness Month is Coming.October is Niemann-Pick disease type C Month to raise awareness for those living with and dying from NP-C.
Ellie Van VelsenApr 21, 20233 minCommunityNP-C Corner – What did you inherit? When I say the word “genetics”, what comes to mind? You may already be familiar with the word “gene” or maybe “DNA” but what do these...
Ellie Van VelsenMar 19, 20233 minCommunityNP-C Corner: Carer Health – You’re important tooI understand that a large portion of readers will be parents, carers, or family members of somebody with NP-C. Therefore, I don’t need to...