Our foundation accepts donations a few ways. Check it out here.

Get ready to be inspired! Our past fundraising events have been nothing short of amazing, from exciting shopping tours to mouth-watering sausage sizzles, and epic gala events. Take a look at our previous successes and get pumped to join us in changing lives!

Ready to connect? Find out more about our new membership program. Connect with families or find out how to become a regular supporter.

Whether through governance roles, projects, events, or advisory contributions, volunteers play an important role in helping advance our work and strengthen the rare disease community.