If necessity is the mother of all inventions, then that is certainly why the ANPDF was created. With no support organisation to turn to, no treatments available, and no hope... Founder and current president Mandy Whitechurch, was determined to bring hope to Australia for her two sons, Matthew and Timmy. The issues she faced in the beginning are still true today, which is why the foundation's goals have not changed.

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To Raise Awareness

The average diagnosis time for Niemann-Pick disease type C is 5 years.

The primary motivation for raising the profile of this disease is not necessarily to fundraise. It is to improve the time available for dedicated treatment. To those already on a life-limiting clock, an additional year (let alone 5 years) of the correct combination therapies could be the single rice grain that tips the scale.

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To Support Families

Any fatal diagnosis can leave the family with feelings of isolation, grief, fear and bewilderment. ANPDF provides practical information, financial and emotional support to both patients and families who choose to reach out.

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To Fund Scientific Research

Our dedicated committee and community raise funds for vital medical research into potential therapies at The Florey of Neuroscience and Mental Health. Find out more here.