top of page
Fundraising and Events

We need your help; from taking part in our stalls as a member of our passionate volunteer team, or raising awareness and funds through creative sponsored events or fundraisers.

Website Tiles_conf26.png

The Australian Niemann-Pick Conference will bring together families, clinicians, researchers, and advocates from across Australia to connect, learn, and strengthen our community.

 

The conference provides an important opportunity to share the latest research, discuss clinical care, and hear directly from those living with Niemann-Pick Diseases. By bringing the community together, the event helps build knowledge, foster collaboration, and ensure families affected by these ultra-rare conditions feel supported and heard. 

Upcoming Events
30
31
1
2
3
4
5
6
7
8
9
10
11
12
13
14
15
16
17
18
19
20
21
22
23
24
25
26
27
28
29
30
1
2
3
4
5
6
7
8
9
10

This June, we invite you to join us for the Australian Niemann-Pick Conference, bringing together families, clinicians, researchers, and advocates to connect, learn, and share knowledge about Niemann-Pick Diseases (NPD).

The conference is an important opportunity to hear the latest updates in research and care, strengthen our community, and ensure the voices of families affected by NPD are heard.


How to take part:

  1. Register to attend the conference

  2. Join sessions with clinicians, researchers, and families

  3. Connect with others in the Niemann-Pick community

 

Your participation helps strengthen awareness, knowledge, and support for families living with NPD—together, we can continue to move forward.

Free Resources to Download

Ready to start your own fundraiser or awareness campaign? Checkout the below ready-to-print posters, templates and social media posts for you to download. Otherwise, contact us for any queries or advice.

Awareness Month Free Resources

Here are some downloadable resources for your organisation to use for promotion in the lead up to Niemann-Pick Awareness Month.

Recent Fundraisers for Niemann-Pick Disease

Check Them Out & Get Inspired!

bottom of page