In the media: 'Born with a rare genetic disease, Noah in fight for better future'
By Robyn Riley (Herald Sun Medical Editor), June 16, 2024. Read the full article here. Imagine a young boy named Noah, only seven years...
top of page
Search
ANPDF
- May 27
- 1 min
In the media: Deanna Carpino Interview with Tony Tardio on Italian Il Globo
Many of you may know Tony Tardio as the newsreader on Melbourne’s radio station 3AW, however he also has another hat as a presenter of a...
155 views0 comments
ANPDF
- Apr 2
- 2 min
In the media: 'Creating community while in search of a cure'
"Smart thinker: Creating community while in search of a cure" - By Elli Jacobs (MiNDFOOD), Sunday March 17, 2022. Read the full article...
24 views0 comments
ANPDF
- Feb 4
- 1 min
In Honour of Mala Singh, 45yo, NP-C
25th May 1978 to 4th February 2024 We are deeply saddened to announce the passing of Mala Singh, a beloved member of our community, who...
119 views0 comments
ANPDF
- Feb 6, 2023
- 1 min
In honour of Will Swanson, 6yo, NP-C
20th January 2017 to 5th February 2023 The Australian NPC Community share their hearts and condolences with the Melbourne-based family of...
187 views0 comments
ANPDF
- Dec 13, 2022
- 1 min
Diagnosis Day - Full series out now
A seven-episode series following Aussies with rare genetic conditions, as they search for answers, options and community. This year, one...
67 views0 comments
ANPDF
- Nov 7, 2022
- 1 min
In the media: ‘How do I tell my kids they won’t grow up?’
"How do I tell my kids they won't grow up" - By Rebecca Whitefield-Baker (Adelaide Now), Sunday November 6, 2022. Read the full article...
321 views0 comments
ANPDF
- Oct 21, 2022
- 2 min
"I Need My Village" - ANPDF answers the call
It takes a village to raise a child, so they say. But when your village is trapped in another country by circumstance and rising airfare...
25 views0 comments
ANPDF
- Sep 18, 2022
- 1 min
In honour of Noah Fox, 8yo, NP-C
Today, our hearts go out to the Melbourne-based family of eight-year-old Noah. This NPC angel passed away Saturday morning due to complicati
164 views1 comment
ANPDF
- Sep 18, 2022
- 1 min
In the media: Brave Mum of 3 children with Niemann-Pick disease type C
Brave mum of 3 children with NP-C shares her story with ABC News.
323 views0 comments
ANPDF
- Jan 10, 2022
- 1 min
In honour of Sebastian Moroney, 3yo, NP-A
Our hearts go out to a Sydney based family whose little boy had "defied predictions" about his life expectancy only to become the...
21 views0 comments
bottom of page