Timmy Lloyd passed away 2nd December 2025. It is with deeply broken hearts that we share the passing of our beloved Timmy Lloyd — known to so many as our RockGod. Born on 11 September 1989 , Timmy left us on 2 December 2025 , surrounded by love, music, and the people who cherished him. From a young age, Timmy’s life was shaped by the complex and challenging journey of living with Niemann-Pick Disease Type C (NPC), a rare, progressive neurological condition. When Timmy and his older brother,...

We are excited to introduce you to the team that will lead the Australian NPC Disease Foundation (ANPDF) in 2025/26.

Read the full Community Update from Mandos Health here: Mandos Health has shared an October update highlighting exciting progress in Niemann-Pick type C (NPC) research. Their investigational therapy, adrabetadex , continues to show promise, with new data suggesting a substantial survival benefit  in infantile-onset NPC1 and evidence of improved cholesterol trafficking . Their survival study was recognised as an “Abstract of Distinction”  at the American Neurological Association Annual Meeting...