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Join date: Jan 1, 2019
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Apr 4, 2025 ∙ 2 min
Advancing NP-C Care in Australia: Our New Guidelines Page
At the Australian NPC Disease Foundation (ANPDF) , we know that access to accurate, up-to-date medical guidance can make all the...
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Feb 11, 2025 ∙ 4 min
Historic Milestone: 78th WHA & #Resolution4Rare – A Game-Changer for Rare Disease Patients
Discover how #Resolution4Rare at the 78th WHA is set to revolutionise rare disease care and policy worldwide—offers renewed hope to patients
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Jan 21, 2025 ∙ 1 min
Pfrieger's Digest | Issue 12 - August 2024 – December 2024
Summaries of latest research advances related to Niemann-Pick diseases, acid sphingomyelinase deficiency (ASMD) and Niemann-Pick type C...
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