2025 ANPDF Committee Elected

Meet our new and returning committee members!

Last Sunday, at our Annual General Meeting, we officially welcomed both new and returning committee members for the year ahead. It was a truly energising moment — a virtual room full of people who care deeply about families living with Niemann-Pick diseases and who are ready to roll up their sleeves and help drive real impact.

Our community is strongest when passionate people step forward, and this year’s committee reflects a beautiful mix of lived experience, professional expertise, and genuine commitment to our mission.

Mandy Whitechurch, Founder and Immediate Past President

A Special Thank You to Mandy Whitechurch

We also want to acknowledge Mandy Whitechurch, who has stepped down from her role as President and into the position of Immediate Past President. Mandy has led the ANPDF with heart, steadiness, and deep personal dedication. Her leadership has guided the Foundation through growth, change, and some of our most important advocacy moments. We’re grateful she will continue offering her wisdom and support in her new role, ensuring a smooth transition and continuity for the work ahead.

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Executive Committee members:

• President – Deanna Carpino

• Vice-President – Sarvesh Soni

• Treasurer – Salman Alfarizi

• Secretary – Harman

• Immediate Past President – Mandy Whitechurch

Deanna Carpino

Sarvesh Soni

Salman Alfarizi

Harman

Mandy Whitechurch

Alexandre Domingue

Alison Malone

Mary Calcagno

Anusha Kafeel

Carly Heath

Felicity Munro

Anne La

Girish Rathor

Marian Shoebridge

Nathalia Rios

Omar Ebaih

Pip Johnston

Ted Sherwood

Vince Demarte

General Committee members:

• Committee Member – Alexandre Domingue

• Committee Member – Alison Malone

• Committee Member – Mary Calcagno

• Committee Member – Anusha Kafeel

• Committee Member – Carly Heath

• Committee Member – Felicity Munro

• Committee Member – Anne La

• Committee Member – Girish Rathor

• Committee Member – Marian Shoebridge

• Assistant Treasurer – Nathalia Rios

• Committee Member – Omar Ebaih

• Committee Member – Pip Johnston

• Committee Member – Ted Sherwood

• Committee Member – Vince Demarte

Contractor Support

• Project Coordinator – Ellie Van Velsen

Our committee members volunteer their time, energy, and expertise to ensure families are supported, projects move forward, and our advocacy remains strong. We are deeply grateful to everyone who has stepped up to serve.

Here’s to a purposeful, collaborative, and impactful year ahead for the ANPDF community.

If you wish to #jointhefight for a cure of NP-C, find out How to Help today or subscribe to stay up to date with future opportunities.