Meet Our New and Returning Committee Members for 2026

1/03/2026: This article has been updated with changed members.

Last Sunday, during our Annual General Meeting, we officially welcomed both new and returning committee members for the year ahead. It was an energizing moment. A virtual room filled with individuals who care deeply about families living with Niemann-Pick diseases. They are ready to roll up their sleeves and help drive real impact.

Our community is strongest when passionate people step forward. This year’s committee reflects a beautiful mix of lived experience, professional expertise, and genuine commitment to our mission.

Mandy Whitechurch, Founder and Immediate Past President

A Special Thank You to Mandy Whitechurch

We also want to acknowledge Mandy Whitechurch, who has stepped down from her role as President and into the position of Immediate Past President. Mandy has led the ANPDF with heart, steadiness, and deep personal dedication. Her leadership has guided the Foundation through growth, change, and some of our most important advocacy moments. We’re grateful she will continue offering her wisdom and support in her new role, ensuring a smooth transition and continuity for the work ahead.

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Executive Committee Members

• President – Deanna Carpino

• Vice-President – Sarvesh Soni

• Treasurer – Salman Alfarizi

• Secretary – Ted Sherwood

• Immediate Past President – Mandy Whitechurch

  
  

Deanna Carpino

Sarvesh Soni

Salman Alfarizi

Mandy Whitechurch

Alexandre Domingue

Mary Calcagno

Anusha Kafeel

Carly Heath

Felicity Munro

Anne La

Girish Rathor

Nathalia Rios

Pip Johnston

Ted Sherwood

Vince Demarte

General Committee Members

• Committee Member – Alexandre Domingue

• Committee Member – Mary Calcagno

• Committee Member – Anusha Kafeel

• Committee Member – Carly Heath

• Committee Member – Felicity Munro

• Committee Member – Anne La

• Committee Member – Girish Rathor

• Committee Member – Marian Shoebridge

• Assistant Treasurer – Nathalia Rios

• Committee Member – Pip Johnston

• Committee Member – Vince Demarte

  
  

Contractor Support

• Project Coordinator – Ellie Van Velsen

  
  

Our committee members volunteer their time, energy, and expertise. They ensure families are supported, projects move forward, and our advocacy remains strong. We are deeply grateful to everyone who has stepped up to serve.

Looking Ahead: A Year of Purpose and Collaboration

As we embark on this new year, we are filled with hope and determination. The ANPDF community is committed to making a difference. Together, we will tackle the challenges ahead and celebrate the victories, both big and small.

Engaging with the Community

Engagement is key to our success. We encourage everyone to participate in discussions, share stories, and connect with one another. Your voice matters. It helps us understand the needs of families affected by Niemann-Pick diseases.

Fundraising Initiatives

Fundraising is essential for our ongoing work. We will be launching several initiatives throughout the year. These efforts will help raise awareness and funds for research, support services, and advocacy. We invite you to join us in these efforts. Together, we can make a significant impact.

Advocacy and Awareness

Advocacy is at the heart of what we do. We will continue to raise awareness about Niemann-Pick diseases. Our goal is to ensure that families receive the support they need. We will work tirelessly to influence policy changes that benefit our community.

Gratitude to Our Supporters

We want to take a moment to express our gratitude to all our supporters. Your contributions make our work possible. Thank you for standing with us as we strive for a better future for families affected by Niemann-Pick diseases.

Here’s to a purposeful, collaborative, and impactful year ahead for the ANPDF community.

If you wish to #jointhefight for a cure of NP-C, find out How to Help today or subscribe to stay up to date with future opportunities.