In honour of Will Swanson, 6yo, NP-C
20th January 2017 to 5th February 2023 The Australian NPC Community share their hearts and condolences with the Melbourne-based family of...
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Niemann-PicksOZ
- Dec 19, 2022
- 1 min
10 Sugar-Free Recipes for Christmas Treats
Join the sweet side of holiday cheer with these recipes! Some of our NPC Warriors are able to take a treatment to help delay the onset of...
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Niemann-PicksOZ
- Dec 13, 2022
- 1 min
Diagnosis Day - Full series out now
A seven-episode series following Aussies with rare genetic conditions, as they search for answers, options and community. This year, one...
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Niemann-PicksOZ
- Dec 6, 2022
- 1 min
Intrabio Media Release | December 5, 2022
"IntraBio Ltd. is pleased to confirm that it has completed recruitment for its Pivotal Trial, Effects of N-Acetyl-L-Leucine on...
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Niemann-PicksOZ
- Nov 7, 2022
- 1 min
In the news: ‘How do I tell my kids they won’t grow up?’
"How do I tell my kids they won't grow up" - By Rebecca Whitefield-Baker (Adelaide Now), Sunday November 6, 2022. Read the full article...
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Niemann-PicksOZ
- Oct 22, 2022
- 2 min
"I Need My Village" - ANPDF answers the call
It takes a village to raise a child, so they say. But when your village is trapped in another country by circumstance and rising airfare...
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Niemann-PicksOZ
- Oct 10, 2022
- 1 min
Pfrieger's Digest | Issue 7 - September 2022
Pfrieger's Digest for Niemann-Pick type C: Summaries of research advances on selected peer-reviewed publications in scientific journals....
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Niemann-PicksOZ
- Sep 28, 2022
- 2 min
October is Niemann-Pick Disease Awareness Month
October is Niemann-Pick Disease Awareness Month. We are prepared to take our fight all the way! Will you join us?
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Niemann-PicksOZ
- Sep 18, 2022
- 1 min
In honour of Noah Fox, 8yo, NP-C
Today, our hearts go out to the Melbourne-based family of eight-year-old Noah. This NPC angel passed away Saturday morning due to complicati
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Niemann-PicksOZ
- Sep 18, 2022
- 1 min
In the news: Brave Mum of 3 children with Niemann-Pick disease type C
Brave mum of 3 children with NP-C shares her story with ABC News.
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Niemann-PicksOZ
- May 30, 2022