Happy NP-C Month! Niemann-Pick Awareness Month is Coming.
October is Niemann-Pick disease type C Month to raise awareness for those living with and dying from NP-C.
top of page
Search
ellievanvelsen0
- Aug 8
- 2 min
NP-C Corner: A History and Possible Future
A History and Possible Future: Explore its captivating history and glimpse into a hopeful future of Niemann-Pick. #NPC #Genetics #Research
44 views0 comments
ellievanvelsen0
- Jul 3
- 2 min
NP-C Corner: Carrier Screening - What are your chances?
Ellie explores the definitions and impacts of how Niemann-Pick disease type C is inherited.
75 views0 comments
ellievanvelsen0
- Apr 21
- 3 min
NP-C Corner – What did you inherit?
When I say the word “genetics”, what comes to mind? You may already be familiar with the word “gene” or maybe “DNA” but what do these...
68 views0 comments
ellievanvelsen0
- Mar 19
- 3 min
NP-C Corner: Carer Health – You’re important too
I understand that a large portion of readers will be parents, carers, or family members of somebody with NP-C. Therefore, I don’t need to...
46 views0 comments
ellievanvelsen0
- Mar 5
- 2 min
Welcome to NP-C Corner
This is the first of (hopefully!) many blog posts to come. Who am I? My name is Ellie. I have two cousins who were diagnosed with...
99 views0 comments
ANPDF
- Feb 6
- 1 min
In honour of Will Swanson, 6yo, NP-C
20th January 2017 to 5th February 2023 The Australian NPC Community share their hearts and condolences with the Melbourne-based family of...
162 views0 comments
ANPDF
- Dec 19, 2022
- 1 min
10 Sugar-Free Recipes for Christmas Treats
Join the sweet side of holiday cheer with these recipes! Some of our NPC Warriors are able to take a treatment to help delay the onset of...
64 views0 comments
ANPDF
- Dec 13, 2022
- 1 min
Diagnosis Day - Full series out now
A seven-episode series following Aussies with rare genetic conditions, as they search for answers, options and community. This year, one...
58 views0 comments
ANPDF
- Dec 6, 2022
- 1 min
Intrabio Media Release | December 5, 2022
"IntraBio Ltd. is pleased to confirm that it has completed recruitment for its Pivotal Trial, Effects of N-Acetyl-L-Leucine on...
24 views0 comments
ANPDF
- Nov 7, 2022
- 1 min
In the news: ‘How do I tell my kids they won’t grow up?’
"How do I tell my kids they won't grow up" - By Rebecca Whitefield-Baker (Adelaide Now), Sunday November 6, 2022. Read the full article...
280 views0 comments
ANPDF
- Oct 21, 2022
- 2 min
"I Need My Village" - ANPDF answers the call
It takes a village to raise a child, so they say. But when your village is trapped in another country by circumstance and rising airfare...
18 views0 comments
ANPDF
- Oct 10, 2022
- 1 min
Pfrieger's Digest | Issue 7 - September 2022
Pfrieger's Digest for Niemann-Pick type C: Summaries of research advances on selected peer-reviewed publications in scientific journals....
31 views1 comment
ANPDF
- Sep 28, 2022
- 2 min
October is Niemann-Pick Disease Awareness Month
October is Niemann-Pick Disease Awareness Month. We are prepared to take our fight all the way! Will you join us?
111 views0 comments
ANPDF
- Sep 18, 2022
- 1 min
In honour of Noah Fox, 8yo, NP-C
Today, our hearts go out to the Melbourne-based family of eight-year-old Noah. This NPC angel passed away Saturday morning due to complicati
147 views1 comment
ANPDF
- Sep 18, 2022
- 1 min
In the news: Brave Mum of 3 children with Niemann-Pick disease type C
Brave mum of 3 children with NP-C shares her story with ABC News.
272 views0 comments
ANPDF
- May 30, 2022
- 1 min
New Volunteer Projects Available!
Check out our new projects page where you can read more about our latest projects that need some good ol'fashioned volunteer power. We...
44 views1 comment
ANPDF
- Apr 4, 2022
- 1 min
New NPC Champion: Urban Caravans
The ANPDF is proud to welcome Urban Caravans as our newest NPC Champion! Through a familial connection from one of our general committee...
45 views0 comments
ANPDF
- Jan 10, 2022
- 1 min
In honour of Sebastian Moroney, 3yo, NP-A
Our hearts go out to a Sydney based family whose little boy had "defied predictions" about his life expectancy only to become the...
11 views0 comments
bottom of page