Ellie Van VelsenApr 83 minCommunityNP-C Corner: Losing the ability to eat safelySometimes you never realise what you have until it’s gone. Join Ellie as she explores what PEG feeding means for those living with NP-C.
Ellie Van VelsenFeb 82 minCommunityNP-C Corner: Everyone deserves to be seenDo you use person-first or identity-first language? Ellie shares how she learned to be more inclusive of people with disabilities.
Ellie Van VelsenJan 83 minCommunityNP-C Corner: Will I be a lab rat? An exploration of clinical trials in the world of Niemann-Pick.Ellie explores what clinical trials are and how they impact patients of Niemann-Pick diseases.
Ellie Van VelsenNov 8, 20233 minCommunityNP-C Corner: Storytelling DNAOur DNA can tell us more information than you might think. As ‘the codebook for life’, it has many stories to tell. Your DNA can give us...