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Reflections from the 2025 Australian Niemann-Pick Conference
The 2025 Australian Niemann-Pick Conference brought together families, clinicians, and researchers for two days of powerful connection, cutting-edge science, and shared lived experience. Highlights included the launch of Australia’s first NPC care standard, moving keynote talks, and vital updates on global clinical trials.
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Jun 263 min read
Azafaros Media Release | July 16, 2024
Azafaros announces positive topline Phase 2 study data with nizubaglustat in GM2 gangliosidosis and Niemann-Pick disease type C Read the...
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Jul 17, 20241 min read
Intrabio Media Release | June 29, 2023
"IntraBio Announces Positive Pivotal Trial Results of IB1001 for the Treatment of Niemann-Pick Disease Type C" Read the full article...
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Jun 29, 20231 min read
It's a wrap! 2022 NPC Conference
The annual NPC Conference, both live and online, attended by patients, families, clinicians and researchers of Niemann-Pick disease.
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Jun 30, 20222 min read
Niemann-Pick Disease Type C: Working together to make a difference
This lecture will present the Australian collaboration and latest research on NP-C, a rare genetic disorder that leads to childhood...
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Oct 10, 20211 min read
Reconnecting at the 2021 NPC Conference
Adapting to the times, our Australian NPC community had the opportunity to connect at this year's conference with our first-ever...
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Jul 27, 20211 min read