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Spotlight on Australian Research: mRNA Hope for NPC at The Florey
Dr Ya Hui Hung presented at the 2025 INPDA Bi-Annual Meeting. Australia is emerging as a hub of innovation in rare disease research, and...
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Oct 213 min read
Charity Golf Day 2025 – What a Day on the Green!
Our first Charity Golf Day was more than a fundraiser — it was a day of awareness, laughter, and love for kids like Noah and families across Australia affected by Niemann-Pick Disease.
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Oct 164 min read
Spotlight on Australian Research: DL33, a Potential New Therapy for Niemann-Pick Type C
DL33, developed by Meizon Innovations, is preparing for the next stage of testing — and could one day change the future of childhood dementia. 💜
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Oct 142 min read
6 Weeks to Silver Ribbon Awareness Month 2025
October is Niemann-Pick Disease Awareness Month and we will be shining a silver light in 2025!
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Aug 203 min read
2024 Silver Raffle Results
Thank you to all the participants of the Silver Raffle in 2024!
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Oct 31, 20241 min read
Raising Awareness for Niemann-Pick Disease: The Meaning and Importance of the Silver Ribbon
As an organisation passionately dedicated to spreading awareness about Niemann-Pick Disease, we are thrilled to delve into the...
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Oct 18, 20243 min read
2024 Poker Tournament: Results
We are thrilled to announce the results of our recent fundraiser: Poker Tournament for Niemann Pick! Thanks to the incredible support...
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Oct 16, 20241 min read