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Spotlight on Australian Research: mRNA Hope for NPC at The Florey
Dr Ya Hui Hung presented at the 2025 INPDA Bi-Annual Meeting. Australia is emerging as a hub of innovation in rare disease research, and...
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Oct 213 min read
Charity Golf Day 2025 – What a Day on the Green!
Our first Charity Golf Day was more than a fundraiser — it was a day of awareness, laughter, and love for kids like Noah and families across Australia affected by Niemann-Pick Disease.
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Oct 164 min read
Niemann-Pick Disease Type C: Working together to make a difference
This lecture will present the Australian collaboration and latest research on NP-C, a rare genetic disorder that leads to childhood...
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Oct 11, 20211 min read
Reconnecting at the 2021 NPC Conference
Adapting to the times, our Australian NPC community had the opportunity to connect at this year's conference with our first-ever...
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Jul 27, 20211 min read
A New Tradition: NP-C Scientific Symposium and Family Conference
Providing an opportunity for both Australian and International professionals to collaborate on all aspects of Niemann-Pick type C...
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Jul 20, 20192 min read