ANPDF Joins Neurological Alliance Australia

We’re proud to share that the Australian NPC Disease Foundation (ANPDF) officially became a member of the Neurological Alliance Australia (NAA) on 16 June 2025.

The NAA is a national coalition of not-for-profit organisations representing more than 600,000 Australians living with progressive neurological or neurodegenerative diseases. By joining this collective, ANPDF is stepping into a stronger national voice—one that is committed to improving the lives of people affected by complex, often rare, neurological conditions.

This is a significant milestone for our community. As the voice for Australians impacted by Niemann-Pick disease, our inclusion in the NAA enables us to:

Advocate together for policies and funding that address unmet needs across neurological conditions

Share knowledge and strengthen networks with other organisations tackling rare and progressive diseases

Ensure Niemann-Pick disease is seen and heard in national conversations about neurology, disability, aged care, research and healthcare reform

Joining the NAA also means Niemann-Pick families are now part of a broader movement calling for urgent action in key areas—including timely diagnosis, access to coordinated care, investment in therapies, and sustainable long-term support.

We are incredibly grateful to the NAA member organisations for welcoming us and look forward to working together to raise awareness, influence systemic change, and create a future with hope for all affected by neurological disease.

Onward, together.

— The ANPDF Team