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Niemann-Pick Disease Type C: Working together to make a difference
This lecture will present the Australian collaboration and latest research on NP-C, a rare genetic disorder that leads to childhood...

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Oct 11, 20211 min read


Reconnecting at the 2021 NPC Conference
Adapting to the times, our Australian NPC community had the opportunity to connect at this year's conference with our first-ever...

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Jul 27, 20211 min read


VIP Charity Social Raffle
Raised $5,700.00 #domantaylegal #vipsocial #raffle An opportunity to learn more about the organisation fighting back against an...

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May 21, 20211 min read


Springtime at Villa Verde Gardens
Raised $17,644.95 #fete #opengarden #raffle Our foundation was lucky enough to be the recipient of the 2019 Annual charity event hosted...

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Nov 18, 20191 min read


Bendigo's 2 Country Divas Concert
Raised $3,523.35 #FloreenaForbes #concert An annual event dating back to 2014, held in Kangaroo Flat. They raised $3,523.35 at 2019's...

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Sep 27, 20191 min read


Incredible Result for the First Annual Gala Dinner
A fantastic first-time event, put together for those affected by Niemann-Pick disease type C in Australia. Raising an incredible $214,540...

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Jul 21, 20191 min read


A New Tradition: NP-C Scientific Symposium and Family Conference
Providing an opportunity for both Australian and International professionals to collaborate on all aspects of Niemann-Pick type C...

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Jul 20, 20192 min read


Hair Shave Day
Raised $10,000+ #HairShave #fundraising Keely and her friend, decided to shave their heads at the start of 2018 and over the year small...

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Nov 18, 20181 min read




