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Spotlight on Australian Research: mRNA Hope for NPC at The Florey
Dr Ya Hui Hung presented at the 2025 INPDA Bi-Annual Meeting. Australia is emerging as a hub of innovation in rare disease research, and...

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Oct 213 min read


Charity Golf Day 2025 – What a Day on the Green!
Our first Charity Golf Day was more than a fundraiser — it was a day of awareness, laughter, and love for kids like Noah and families across Australia affected by Niemann-Pick Disease.

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Oct 164 min read


Niemann-Pick Awareness Month 2024: Shining a Silver Light on NPD
October is Niemann-Pick Disease Awareness Month and we will be shining a silver light in 2024!

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Oct 1, 20242 min read




