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Charity Golf Day 2025 – What a Day on the Green!
Our first Charity Golf Day was more than a fundraiser — it was a day of awareness, laughter, and love for kids like Noah and families across Australia affected by Niemann-Pick Disease.
ANPDF
Oct 164 min read
Xenpozyme Listed on LSDP for Niemann-Pick ASMD (Type A/B and Type B)
Xenpozyme® (olipudase alfa) has been listed on the Life Saving Drugs Program (LSDP) for patients with Acid Sphingomyelinase Deficiency (ASMD).
ANPDF
Oct 22 min read
Advancing NP-C Care in Australia: Our New Guidelines Page
At the Australian NPC Disease Foundation (ANPDF) , we know that access to accurate, up-to-date medical guidance can make all the...
ANPDF
Apr 42 min read