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Community News and Events

Welcome to the ANPDF blog, where we share the latest updates, stories, and breakthroughs in the fight against Niemann-Pick Disease. Join us as we raise awareness, support families, and drive research forward.

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In Honour of Sebastian Chamberlain, 24yo, NP-C

12th February 2000 to 12th July 2024 It is with heavy hearts that we announce the passing of Sebastian Chamberlain, who peacefully left...

ANPDF

Jul 12, 20242 min read

In Honour of Mala Singh, 45yo, NP-C

25th May 1978 to 4th February 2024 We are deeply saddened to announce the passing of Mala Singh, a beloved member of our community, who...

ANPDF

Feb 4, 20241 min read

In honour of Will Swanson, 6yo, NP-C

20th January 2017 to 5th February 2023 The Australian NPC Community share their hearts and condolences with the Melbourne-based family of...

ANPDF

Feb 6, 20231 min read

In honour of Noah Fox, 8yo, NP-C

Today, our hearts go out to the Melbourne-based family of eight-year-old Noah. This NPC angel passed away Saturday morning due to complicati

ANPDF

Sep 18, 20221 min read

In honour of Sebastian Moroney, 3yo, NP-A

Our hearts go out to a Sydney based family whose little boy had "defied predictions" about his life expectancy only to become the...

ANPDF

Jan 10, 20221 min read

Community News and Events

Topics

In Honour of Sebastian Chamberlain, 24yo, NP-C

In Honour of Mala Singh, 45yo, NP-C

In honour of Will Swanson, 6yo, NP-C

In honour of Noah Fox, 8yo, NP-C

In honour of Sebastian Moroney, 3yo, NP-A