February - 2024

2024 ANPDF Committee Elected

We are excited to introduce you to the team that will lead the Australian NPC Disease Foundation (ANPDF) in 2024/25.

Childhood Dementia Initiative End of Year Report | February 8, 2024

The Childhood Dementia Initiative (CDI) has made significant progress in 2023, thanks to the dedication of its partners and supporters....

NP-C Corner: Everyone deserves to be seen

Do you use person-first or identity-first language? Ellie shares how she learned to be more inclusive of people with disabilities.

IntraBio Media Release | February 7, 2024

The New England Journal of Medicine has published a "Science behind the study" editorial on IB1001 Read the full announcement from...

In Honour of Mala Singh, 45yo, NP-C

25th May 1978 to 4th February 2024 We are deeply saddened to announce the passing of Mala Singh, a beloved member of our community, who...

IntraBio Media Release | February 7, 2024

The New England Journal of Medicine has published the detailed results of the IB1001-301 Phase 3, Pivotal study with N-acetyl-L-leucine...

IntraBio Community Update | February 1, 2024

New Drug Application for IB1001 for the treatment of NP-C disease was submitted to the US FDA in January 2024 Read the full statement...