Search
ANPDF
Feb 21, 20242 min read
2024 ANPDF Committee Elected
We are excited to introduce you to the team that will lead the Australian NPC Disease Foundation (ANPDF) in 2024/25.
24 views
ANPDF
Feb 9, 20241 min read
Childhood Dementia Initiative End of Year Report | February 8, 2024
The Childhood Dementia Initiative (CDI) has made significant progress in 2023, thanks to the dedication of its partners and supporters....
9 views
Ellie Van Velsen
Feb 8, 20242 min read
NP-C Corner: Everyone deserves to be seen
Do you use person-first or identity-first language? Ellie shares how she learned to be more inclusive of people with disabilities.
22 views
ANPDF
Feb 8, 20241 min read
IntraBio Media Release | February 7, 2024
The New England Journal of Medicine has published a "Science behind the study" editorial on IB1001 Read the full announcement from...
24 views
ANPDF
Feb 4, 20241 min read
In Honour of Mala Singh, 45yo, NP-C
25th May 1978 to 4th February 2024 We are deeply saddened to announce the passing of Mala Singh, a beloved member of our community, who...
129 views
ANPDF
Feb 3, 20241 min read
IntraBio Media Release | February 7, 2024
The New England Journal of Medicine has published the detailed results of the IB1001-301 Phase 3, Pivotal study with N-acetyl-L-leucine...
40 views
ANPDF
Feb 1, 20241 min read
IntraBio Community Update | February 1, 2024
New Drug Application for IB1001 for the treatment of NP-C disease was submitted to the US FDA in January 2024 Read the full statement...
51 views