"How do I tell my kids they won't grow up" - By Rebecca Whitefield-Baker (Adelaide Now), Sunday November 6, 2022. Read the full article here. Sharing your heart-breaking story with the world is never an easy task. With help from the Childhood Dementia Initiative, Renee continues to raise awareness for disease like Niemann-Pick disease type C that cause Childhood Dementia. "Ultimately I want a cure ... somthing that is going to help my kids and other kids - raising awareness i