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2024 NPC Conference: Advancing Research and Care for Niemann-Pick Disease

The 2024 NPC Conference, hosted by the Australian NPC Disease Foundation (ANPDF), took place at the Florey Institute of Neuroscience and Mental Health in Melbourne from June 20-21, 2024. This event brought together patients, clinicians, and researchers dedicated to combating Niemann-Pick disease type C (NP-C).



Key Highlights

Keynote Speakers and Panels: The conference featured a keynote address from longtime advocates and NP-C carers, Martin and Michelle Roberts. It was a heart-hitting entree to the two-day event, that reached families and professionals alike. The following panels featured leading experts in the field, including discussions on the latest clinical trials and research advancements. Attendees gained insights from panel discussions covering a range of topics, from innovative treatment approaches to patient care strategies.


Research and Clinical Updates: Participants heard about the most recent developments in NP-C research, including updates on gene therapy, novel drug treatments, and other cutting-edge scientific advancements aimed at improving patient outcomes.


Networking Opportunities: The conference provided ample opportunities for networking, allowing attendees to connect with peers, share experiences, and foster collaborations.


Community Engagement: A significant aspect of the conference was its focus on community. Sessions were dedicated to the perspectives of those living with NP-C, as well as their families and caregivers. This inclusive approach ensured that the voices of those directly affected by the disease were heard and valued.


Venue and Logistics: The Florey Institute, renowned for its research into brain and mind disorders, provided a fitting backdrop for this important event. Located in Parkville, Melbourne, the institute’s state-of-the-art facilities supported the conference’s diverse program.



Looking Ahead

The 2024 NPC Conference was a pivotal event in the fight against NP-C, offering a unique opportunity for the community to come together, share knowledge, and support one another. As we look forward to future conferences, the insights and connections made at this year’s event will undoubtedly drive continued progress in NP-C research and care.


Keep an eye out for conference sessions being uploaded to our youtube channel!



 

Acknowledgments

The ANPDF is grateful to their key partners and sponsors that enabled the attendance of our patients from all over Australia both in-person and virtually.

  • Venue Partner - The Florey Institute of Neuroscience and Mental Health

  • Grant Sponsor - National Disability Conference Initiative Grant funded by the Australian Government Department of Social Services

Thank you to the organising committee; Deanna Carpino, Andrew Carpino, Ya Hui Hung, Mandy Whitechurch, Milva Carpino and Mary Calcagno - for their tireless hours that were volunteered for the success of this event. Special mentions to the returning volunteers from The Florey, and host, Felicity Munro. Thank you to all the new and returning speakers who kindly gave their time to delivering their experience and expertise to our Australian audience. Thank you to all involved.

 
Thank you to our incredible event sponsors!

Cyclo Therapeutics

PREMIER SPONSOR


Cyclo Therapeutics are dedicated to developing life-changing medicines through science and innovation for patients and families living with challenging diseases.


Silver Sponsors
Bronze Sponsors




Event Suppliers

Printing Partner Enviro Print Group www.enviroprintgroup.com.au As both a community and event partner, this Aussie owned company donated all their printing services to our event.



Venue Partner florey.edu.au


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