Raised $3,523.35 #FloreenaForbes #concert An annual event dating back to 2014, held in Kangaroo Flat.​ They raised $3,523.35 at 2019's concert, making a grand total of $18,529.85 since 2014. From Floreena: Big thank you to the Backing Band, Fred Goodwin Lead Guitar, Ray Hassler Pedal Steel, Leigh Bice Bass Guitar, Terry Anderson Keyboard. Gordon Young Drums, The Chuckleberry Farmers for taking these photo's of the Australian Niemann Pick Fundraiser & thank you to Em Penhall for taking a video of the whole evening on the 27th September 2019. Thank you to all the musicians and comedy by the Cuckleberry Farmers & Little old Ladies with Shirl Brown that made the night such a success. Big Thank you to all the people that attended. Thank you to George Farnham for his great sound without you there would be no show and without the artists their would be no show so thank you to everyone Big thank you to Brendan Banfield our stage manager,all those that helped set up & pull down the equipment, Debbie Penhall for helping throughout the evening and Big thank yo to the Kangaroo Sports Club. Phoenix Fm & Officeworks. To date we have raised the amount of $3523.35 cents To help find a cure for the Australian Nieman Pick Foundation Inc. Olive Bice OAM & I, Floreena Forbes were so thrilled with the outcome of the concert. Interested in organising your own raffle or fundraiser? Contact us today for free advice and resources.

Raised $12,825.00 #christmas #raffle Raising vital funds to support Aussies affected by Niemann-Pick type C and research for a cure of this fatal disease. We had 6 great prizes to be won with a total prize pool over $10,000! Tickets were only $5, available to VIC, NSW, QLD, WA, TAS & SA residents over 18 years old. Drawn on the 21st of December 2021 at 10pm. Winners: 1ST PRIZE WINNER Ticket Number: #298 From Mill Park, VIC 2ND PRIZE WINNER Ticket Number: #179 From Cranbourne north, VIC 3RD PRIZE WINNER Ticket Number: #1880 From Chifley, NSW 4TH PRIZE WINNER Ticket Number: #68 From Saint Kilda West, VIC 5TH PRIZE WINNER Ticket Number: #239 From Craigieburn, VIC 6TH PRIZE WINNER Ticket Number: #476 From St Lucia, QLD Interested in organising your own raffle or fundraiser? Contact us today for free advice and resources.

Raised $5,700.00 #domantaylegal #vipsocial #raffle An opportunity to learn more about the organisation fighting back against an Ultra-Rare and Fatal disease affecting our Australian children. Raffle Winners: Dion Bastian, Ticket #15 Nick Solomos, Ticket #33 Fiona Chin, Ticket #19

Raised $3,658.69 #glenarthon #fundraiser #auction A charity live auction dedicated to two different charities.

Raised $1,038.00 #ColoursforTommy #fundraising #preschool Thank you Tenterfield Preschool for their amazing donation. A whole week of individual themed colours ending in one epic RAINBOW DAY! It was great to see how the children interpreted rainbow into their wardrobe. Some opted for a rainbow print, while others strived to have the brightest and most eclectic outfits. All in all, everyone looked great, and it was all for a wonderful cause! - @tenterfieldpreschool Each day involved themed coloured foods along with colour corresponding activities such as playdough, craft and painting, and storytime. Interested in organising your own raffle or fundraiser? Contact us today for free advice and resources.

Raised $5,191.05 #spooksdale #househaunt A home haunt in honour of Allana Dale that included two haunting sessions per day over three days, raffles, sausage sizzle, $2 entry fee and a "Hair Shave"!

Raised $2,583.00 #bunnings #sausagesizzle A simple sizzling fundraiser courtesy of Bunnings over two days. For info on how to organise your own local Bunnings fundraiser, contact info@npcd.org.au.

Are you game? #fundraising #bingo Amid the coronavirus outbreak, our Aussie NPC Warriors are getting creative and ready to try new things to keep funds flowing towards supporting our families and research for better treatments. Join Donation Bingo for your chance to win a $250 giftcard!

Adapting to the times, our Australian NPC community had the opportunity to connect at this year's conference with our first-ever hybrid-virtual event. Between changing government restrictions, technological issues, and bringing people together with a spectrum of needs, our organising committee and events agency had a lot to contend with! Yet, the conference came together with a lot of fond farewells at the end. #NPCconf2021

Raised $1,325.00 Organised by Ali Malone #NPCbday2020 #raffle Winners: Vicki Malone, Ticket #162 Tracey Willis, Ticket #226 Vicki Malone, Ticket # 159 Angela Jackson, Ticket #175

"Game changer for kids with rare diseases" - Story by Alanah Frost, Herald Sun Images by Jay Town, Herald Sun Read the full article here. The Royal Children’s Hospital (RCH) Foundation has unveiled the Rare Diseases Now (RDNow) program, a groundbreaking initiative that promises to revolutionize the diagnosis and treatment process for children with rare diseases in Australia. Quicker Diagnosis and Advanced Care: The RDNow program aims to provide patients with a diagnosis, treatment, and care within a year of presenting their symptoms. This is a significant improvement over the current situation, where diagnosis can take months or even years. A Collaborative Effort: The program is a collaborative effort by the Murdoch Children’s Research Institute (MCRI) and involves a team of doctors, genetic counsellors, research scientists, and bioinformaticians. They will utilize new technologies and testing methods, including genomic sequencing, to expedite the diagnostic process. The Impact of Rare Diseases: With over 6000 known rare diseases affecting children, and 75% of them having no cure, the RDNow program is a beacon of hope for the 15,000 Australian children diagnosed each year1. Tragically, almost a third of these children will not survive past their fifth birthday. A Personal Story: The article shares the touching story of little Noah Carpino, who was diagnosed with Niemann-Pick disease, type C. This rare condition has only 30 known cases in Australia and currently has no cure. Noah’s mother, Deanna Carpino, expressed how the RDNow program could provide better access to much-needed resources for families like hers. A Step in the Right Direction: Professor David Thorburn of MCRI highlighted that the RDNow program is a step in the right direction, offering a quicker diagnosis which could sometimes be achieved in months instead of years. This new program represents a significant advancement in the care for children with rare diseases, and we at the Australian NPC Disease Foundation are excited about the potential it holds for improving the lives of those affected. To help families like Noah's around Australia, as well as fund vital research for a cure, support the Australian NPC Disease Foundation in its goals of "Research. Cure. Persevere." Ways to support NP-C in Australia: Donate online Shop at our online NPC store Fundraise your way! Check our free resources and inspo online.

Raised $35,265.22 Organised by Kellie Adams #fundraiser #raffle Winners: R. Neale, Ticket #14477 N. Lew, Ticket #06551 D. Chalmer, Ticket #20062 ​ Permits: VIC 10569/19, WA LS213493219, SA M13751