Caring Connections Group
About
Welcome to the Niemann-Pick 'Caring Connections' Family Support Group!
Our supportive online community is where Australian families come together to share experiences, videos, tips, and support. Whether you’re seeking advice on managing the condition, looking for resources, or simply wanting to connect with others who understand, this is the place for you!
Become part of a caring and understanding community that supports each other through the unique journey of living with Niemann-Pick disease.
Group Rules
Respect one another
Everyone has a different point of view so feel free to respectfully disagree. Please be kind and courteous at all times.
Be respectful of others’ privacy
Being in this group depends on our trust of one another. Some discussions may be sensitive or contain sensitive information, so what’s said in the group should stay in the group.
No Medical Advice
While sharing experiences is encouraged, avoid giving medical advice. Always consult healthcare professionals for medical concerns.
Stay On Topic
Keep discussions relevant to Niemann-Pick disease and related family support topics.
Info
- Paying members
Only paying members can view group content.
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July 29, 2024
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