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Shine a #SilverLight on
Awareness Month

Niemann-Pick Disease

During October, we come together to raise awareness for those affected by Niemann-Pick disease, specifically Niemann-Pick type C (NPC) and Acid Sphingomyelinase Deficiency (ASMD). Together, we can make a difference and support families and research efforts.

Welcome to ANPDF

Supporting Research and Families of
Niemann-Pick Disease in Australia

The Australian NPC Disease Foundation (ANPDF) aims to give hope, support and connection to those affected by Niemann-Pick disease type C (NPC) and Acid Sphingomyelinase Deficiency (ASMD) in Australia. We provide the opportunities through conversations, events and our disease-specific conference held in Victoria with an underlying focus on research for better treatments.

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Research. Cure. Persevere.

We are aiming to change the story of just "go home and make memories". We want to take action against the terrible realities of Niemann-Pick. Together.

Niemann-Pick in Australia

Discover more about Niemann-Pick Disease, the research we endorse, and how you can assist families impacted by this ultra-rare genetic disorder. Our goal is to increase awareness and generate funds for research to discover a cure for NPC. We are convinced that by working together, we can make a positive impact on the lives of those affected by Niemann-Pick Disease.

Niemann-Pick Advocacy Partners

International Niemann-Pick Disease Alliance 🎗️ International Niemann-Pick Disease Registry🎗️ Rare Voices Australia🎗️ Childhood Dementia Initiative

Stay Tuned with Updates

At the ANPDF, our volunteers and members use the blog section to share stories, news, and resources related to our mission. Our goal is to create a community where people can find comfort, support, and hope. We hope you find our blog informative and inspiring. Don't forget to subscribe to stay up-to with our latest posts!

Events