Lunch & Learn Series: Rare Disease Day

This is a special invitation for you to join us at our Lunch and Learn Webinar event. In this online session we’ll be talking about Rare Disease Day and highlighting the amazing work of three organisations in the rare disease space. Experts from The Australian NPC Disease Foundation, EB Research Partnership Australia and Huntington's Victoria will be joining us to help guide our discussion, so don’t miss this chance to learn more about this important topic.

• The Australian NPC Disease Foundation aims to give hope, support and connection to those affected by Niemann-Pick disease type C (NP-C) and Acid Sphingomyelinase Deficiency (ASMD) in Australia.

• EB Research Partnership Australia is the largest not-for-profit funding research aimed at treating and ultimately curing Epidermolysis Bullosa.

• Huntington's Victoria is a non-profit organisation that supports individuals impacted by the Huntington’s disease.

Book your spot now!

Thursday 29th February 2024. 12pm (AEST)