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Raised $344.75+ #sugarfreeziesday #thenonastiesproject Joining the sugar-free movement for a good cause, was our local Swim School in Tullamarine. Prioritising the health, social, educational and recreational needs of Australian children is top of the agenda at The No Nasties Project. Sugar FREE-zies Icy Stix Day is a day where everyone is a champion and where fun, laughs and spectacular times are the order of the day. Sugar FREE-zies are the perfect choice for summer and kids love them! They contain ZERO sugar, ZERO preservatives and NOTHING artificial and they are Australian Made. Thank you to @the_no_nasties_project and @TheNoNastiesProject. Find out more here: The No Nasties Project Interested in organising your own raffle or fundraiser? Contact us today for free advice and resources.

With only 7 weeks to go, we are in the final countdown to our long-awaited Charity Gala Dinner. Join us for a fantastic night of fine wine & dining, dancing, auctions and more! Find out more here or Register Now to secure your seat at this fast-selling event! #NPCgala #fundraising

A fantastic first-time event, put together for those affected by Niemann-Pick disease type C in Australia. Raising an incredible $214,540 from sponsors, auctions, sweepstakes and ticket sales. Patients, Families, people with a medical or scientific background, Professionals and everyone in between, from Victoria and beyond – came together to support Australia’s first Gala Dinner. A fantastic event put together for those affected by Niemann-Pick disease type C in Australia. From a net total raised of $73,164.09, over $50k was received during the gala dinner between live auctions and sweepstake competitions, with many people going home with an awkward number of prizes under their belts. President of ANPCDF Mandy Whitechurch said, “Together we are one for the one purpose of our lives, our children.” All the generous donations and funds raised will be going towards research, education and patient and family centred care. Proudly Supported By Premier Sponsor: Westside Meats Australia Continually investing in all aspects of processing so we deliver premium quality Building on five decades of hard work, honesty, quality & service; Westside Meats is an integrated company that has been in operation since 1963 and proudly known as "the butcher's butcher". Major Sponsor: EnviroPrintGroup Market leaders in environmentally responsible printing. EPG have delivered industry tailored printing services since 2010 whilst meeting rigorous standards in ecological sustainability. Truly a dedicated, close-knit team with a big heart and a fun, responsible approach. Program Sponsors Social Sponsors

Following a very productive Annual General Meeting, we welcome our new and returning committee members! After an exceptionally tough year in 2020, the Australian NPC Disease Foundation (ANPDF) team was excited to return (virtually) for another Annual General Meeting. Every year we battle to raise awareness of Niemann-Pick type C disease in Australia, as well as funds to support our families and research, and 2021 will be no exception! On that note, let's welcome our 2021 team... Executive Committee members: Deanna Carpino, President Mandy Whitechurch, Vice-President & Founder Chris Makulski, Treasurer Pip Johnston, Board Secretary Andrew Carpino, Public Officer General Committee members: Ali Malone Felicity Munro Marian Shoebridge Mary Brock Mary Calcagno Mara Demarte Milva Carpino Sara Sesto Trina Sheehan Vince Demarte If you wish to #jointhefight for a cure of NP-C, find out How to Help today or subscribe to stay up to date with future opportunities.

This lecture will present the Australian collaboration and latest research on NP-C, a rare genetic disorder that leads to childhood dementia. #theFlorey #lecture #research The importance of the patient, clinician and scientist working together, especially for rare diseases, is increasingly recognised as key to achieving better health outcomes for the patient. This lecture will feature presentations from the Australian NPC disease Foundation (Niemann-Pick Disease Type C patient advocacy and support group), Professor Mark Walterfang (neuropsychiatrist) and Dr. Ya Hui Hung (scientist), who are working together with a common goal to improve the health of Niemann-Pick Disease Type C (NP-C) patients. Lectures are recorded and available at florey.edu.au and on the Florey youtube channel after each event.

Raised $3,240.84 Organised by Deanna Carpino #NPCgift4Mum #raffle Winners: G. Bertoncini, Ticket #586 A. Borsato, Ticket #235 T. Soulis, Ticket #515

Raised $3,523.35 #FloreenaForbes #concert An annual event dating back to 2014, held in Kangaroo Flat.​ They raised $3,523.35 at 2019's concert, making a grand total of $18,529.85 since 2014. From Floreena: Big thank you to the Backing Band, Fred Goodwin Lead Guitar, Ray Hassler Pedal Steel, Leigh Bice Bass Guitar, Terry Anderson Keyboard. Gordon Young Drums, The Chuckleberry Farmers for taking these photo's of the Australian Niemann Pick Fundraiser & thank you to Em Penhall for taking a video of the whole evening on the 27th September 2019. Thank you to all the musicians and comedy by the Cuckleberry Farmers & Little old Ladies with Shirl Brown that made the night such a success. Big Thank you to all the people that attended. Thank you to George Farnham for his great sound without you there would be no show and without the artists their would be no show so thank you to everyone Big thank you to Brendan Banfield our stage manager,all those that helped set up & pull down the equipment, Debbie Penhall for helping throughout the evening and Big thank yo to the Kangaroo Sports Club. Phoenix Fm & Officeworks. To date we have raised the amount of $3523.35 cents To help find a cure for the Australian Nieman Pick Foundation Inc. Olive Bice OAM & I, Floreena Forbes were so thrilled with the outcome of the concert. Interested in organising your own raffle or fundraiser? Contact us today for free advice and resources.

Raised $12,825.00 #christmas #raffle Raising vital funds to support Aussies affected by Niemann-Pick type C and research for a cure of this fatal disease. We had 6 great prizes to be won with a total prize pool over $10,000! Tickets were only $5, available to VIC, NSW, QLD, WA, TAS & SA residents over 18 years old. Drawn on the 21st of December 2021 at 10pm. Winners: 1ST PRIZE WINNER Ticket Number: #298 From Mill Park, VIC 2ND PRIZE WINNER Ticket Number: #179 From Cranbourne north, VIC 3RD PRIZE WINNER Ticket Number: #1880 From Chifley, NSW 4TH PRIZE WINNER Ticket Number: #68 From Saint Kilda West, VIC 5TH PRIZE WINNER Ticket Number: #239 From Craigieburn, VIC 6TH PRIZE WINNER Ticket Number: #476 From St Lucia, QLD Interested in organising your own raffle or fundraiser? Contact us today for free advice and resources.

Raised $5,700.00 #domantaylegal #vipsocial #raffle An opportunity to learn more about the organisation fighting back against an Ultra-Rare and Fatal disease affecting our Australian children. Raffle Winners: Dion Bastian, Ticket #15 Nick Solomos, Ticket #33 Fiona Chin, Ticket #19

Raised $3,658.69 #glenarthon #fundraiser #auction A charity live auction dedicated to two different charities.

Raised $1,038.00 #ColoursforTommy #fundraising #preschool Thank you Tenterfield Preschool for their amazing donation. A whole week of individual themed colours ending in one epic RAINBOW DAY! It was great to see how the children interpreted rainbow into their wardrobe. Some opted for a rainbow print, while others strived to have the brightest and most eclectic outfits. All in all, everyone looked great, and it was all for a wonderful cause! - @tenterfieldpreschool Each day involved themed coloured foods along with colour corresponding activities such as playdough, craft and painting, and storytime. Interested in organising your own raffle or fundraiser? Contact us today for free advice and resources.

Raised $5,191.05 #spooksdale #househaunt A home haunt in honour of Allana Dale that included two haunting sessions per day over three days, raffles, sausage sizzle, $2 entry fee and a "Hair Shave"!