©2019 by Australian NPC Disease Foundation Inc.

Australian NPC Disease Foundation Inc

Executive Team

Since its inception in 2009, with just 2 official members, the foundation has now grown to 16 members. An amazing collection of people from all backgrounds, committed to making a difference.


Mandy Whitechurch


With a strength and determination rarely seen, Mandy has overcome many personal battles in an effort to give her sons every chance and advantage available. Beginning with the founding of the Australian NPC Foundation Inc, Mandy has battled to not only raise funds, but also create key connections with international foundations. Thus bringing forward vital treatment opportunities for other families suffering from NPC in Australia.

"My youngest son Timmy was diagnosed in 2007 (17yrs old), shortly followed by his older brother Matthew in 2009 (19yrs old. At the time I had nowhere to turn for help.  In 2009, I founded the Australian NPC Disease Foundation in hope that no other family diagnosed would feel the isolation I felt in Australia."