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Advocating for Treatments in Australia
Advocating for Treatments in Australia

Tue, 19 Nov

|

Webinar

Advocating for Treatments in Australia

This webinar will feature Louise Healy, Advocacy and Engagement Manager at Rare Voices Australia (RVA), alongside the Australian NPC Disease Foundation (ANPDF) team, discussing how we can advocate for FDA-approved treatments for rare diseases in Australia.

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Time & Location

19 Nov 2024, 7:00 pm – 8:00 pm AEDT

Webinar

Guests

About the Event

This webinar will feature Louise Healy, Advocacy and Engagement Manager at Rare Voices Australia (RVA), alongside the Australian NPC Disease Foundation (ANPDF) team, discussing how we can advocate for FDA-approved treatments for rare diseases in Australia. Join us to learn about the steps being taken by the ANPDF, the challenges of securing treatment approval, and how you can get involved.


Agenda:

  1. Welcome and Introduction to ANPDF and Louise Healy (5 minutes)

  2. Louise Healy and RVA: Advocacy for Rare Disease Treatments (15 minutes)

  3. ANPDF's Current Advocacy Steps for FDA-Approved Treatments (10 minutes)

  4. Q&A Session (30 minutes)


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The ANPDF is dedicated to providing support and hope for a better future to all those living with Niemann-Pick disease.

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©2024 by Australian NPC Disease Foundation Inc.

Australian NPC Disease Foundation Inc is registered with the Australian Tax Office as an Income Tax Exempt Charity. All donations over $2 are tax deductible.

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