This lecture will present the Australian collaboration and latest research on NP-C, a rare genetic disorder that leads to childhood dementia.
Date/Time: October 21, 2021 - 11:00 AM to 12:00 PM
Hosted by The Florey Institute of Neuroscience and Mental Health
The importance of the patient, clinician and scientist working together, especially for rare diseases, is increasingly recognised as key to achieving better health outcomes for the patient. This lecture will feature presentations from the Australian NPC disease Foundation (Niemann-Pick Disease Type C patient advocacy and support group), Professor Mark Walterfang (neuropsychiatrist) and Dr. Ya Hui Hung (scientist), who are working together with a common goal to improve the health of Niemann-Pick Disease Type C (NP-C) patients.