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2022 Committee Elected

Following a very productive Annual General Meeting, we welcome our new and returning committee members!

On Sunday, the Australian NPC Disease Foundation (ANPDF) team was excited to return (virtually) for our Annual General Meeting.

After recommiting to our goals of raising awareness, supporting families, funding research for better treatments, the following committee team was elected;

Executive Committee members:
  • Deanna Carpino, President

  • Mandy Whitechurch, Vice-President & Founder

  • Chris Makulski, Treasurer

  • Pip Johnston, Board Secretary

  • Andrew Carpino, Public Officer

General Committee members:
  • Marian Shoebridge

  • Mary Calcagno

  • Milva Carpino

  • Ruth Gott

  • Sarah Mercuri

  • Vince Demarte

Scientific Advisory Board members:
  • Ya Hui Hung, Chair

  • Ashley Bush

  • Caroline Hastings

  • Felicity Munro

  • Joy Lee

  • Mark Walterfang

  • Pip Johnston

  • Tina Soulis

If you wish to #jointhefight for a cure of NP-C, find out How to Help today or subscribe to stay up to date with future opportunities.

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2021 Committee Elected

Following a very productive Annual General Meeting, we welcome our new and returning committee members! After an exceptionally tough year in 2020, the Australian NPC Disease Foundation (ANPDF) team wa

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