We need your help.....please sign the petition by clicking on the link below.
The Australian NPCD Foundation needs your help
NPC mum Mandy Jacobs says...
"I have two weeks today to try and convince the Australian government that the 9 patients living with NPC in Australia having the ONLY treatment drug available currently on Compassionate Use program to prolong their lives with Npc Disease to grant us PBAC Approval.Yes there are only 9 of us in this nation and the Governement has failed the last 2 attempts to see that their lives are worthy of spending money on... If i fail, we risk loosing the drug in Australia for those 9 patients. two of which are my babies... :( "